Like most Southern Californians, my family loves the beach. This is especially true for my daughter, Amy, who grew up collecting facts about sea creatures much the same way some children gravitate toward baseball statistics or superhero trivia. Once, as a second grader on a tour at a local aquarium, she began expertly fielding questions from adults about the differences behind phytoplankton and zooplankton. The ocean is Amy’s happy place.
Amy’s life has always been full of medical challenges. It started with migraines at age 2, and progressed to issues with her eyes, bones, brain, and skin. Though doctors were unable to find a diagnosis that would explain it all, they knew she had some type of syndrome that was likely genetic. Amy took her physical disabilities in stride, never complaining about what she could not do; always looking for her next adventure.